Sunday, January 25, 2009

Met My New Specialist

Yesterday I had the pleasure of meeting the head perinatologist in the practice that is now taking care of me.  He has a great reputation and is very familiar with monamniotic twins.  He was apart of an 8 year study advocating for intensive hospital monitoring

I had to switch peri's because the one I was originally seeing did not have privileges at the hospital close to my home.  I loved my former peri.  He and I were on the same page and had a similar outlook about pregnancy.  Not only was he a fabulous physician, but he was also compassionate, thoughtful and engaging.

The peri did a full ultrasound screen on me and the twins are weighing 3.3 lbs and 3.5 lbs.  So excited!  Grow babies! Grow!  The peri was very impressed with their growth and how the monitoring as been going.  He made a comment about some singletons tracings (heart rates over an extended period of time) do not even looking that good.

But it was clear it the realm of doctors that are taking care of me that his role is the "enforcer".  My OB who is wonderful knows my wishes listens and as long as things continue to look good has expressed support for them.  The other peri in the practice expressed a desire to proceed with caution, but was also supportive of my desires.  The head peri was much more stringent.  He believes there is a way things should go and that's that.  He wants me to come off Sulindac, have an amnio and to deliver at 34/35 weeks.  Now don't get me wrong, he listened to what I had to say and even comprised on a few things, but overall he wants things the way he wants them.

I should explain that my desire for this pregnancy is outside of the norm of how monoamniotic pregnancies typically go.  Typically, patients are admitted into the hospital at 24 weeks for monitoring and deliver between 32-34 weeks.  Admission into the hospital is about viability; what do you consider viability.  While some doctors will require their patients to be admitted at 24 weeks, this decision is a very personal choice for the mother and the family.  Survival rate, quality of life, all of these things are very difficult matters to discuss and should be by no means made by the health care provider.  We haven't even gotten into the nuts and bolts of how often to monitor or how difficult it is to keep 24 week old babies on the monitor.  These are all things my husband and I considered before my admission into the hospital which we decided to do at 27.5 weeks.  I did begin home monitoring at 24 weeks and was comfortable with that level of "intervention."

Once admitted to the hospital families have to be prepared to deliver.  So assuming everything is going great, the next question is when to deliver.  As I stated, most momo twins are delivered between 32-34 weeks.  The studies show this is the safest time to deliver.  However, there is a gap in the studies.  There is a not a study that addresses continuous monitoring and a later delivery.  Since, I am on 24/7 monitoring and any signs of the babies distress can immediately be detected I see no reason to not let the babies stay inside longer.  Honestly, ideally I would wait until I actually go into labor, but I also realize that babies gain a lot of weight in the last month which could very easily cause cord compression.  Due to this, I am willing to deliver at 36 weeks.  Again, I understand this is not the norm, but I do not feel as though I am comprising myself or the twins because I am on continuous monitoring.  As I told the doctor, if they look as good as they do now, I will be hard pressed to deliver any earlier than 36 weeks.  

The peri is most comfortable with deliver no later than 34 weeks and may be willing to push it to 35 if everything is going great.  I left the conversation there because we are still 4-6 weeks off from any of this conversation mattering and anything could happen between now and then.

I do not believe the twins need to be routinely delivered by c-section, that moms routinely need to be put on bedrest, or that they need to be routinely delivered at a certain week.  I DO understand that twin pregnancies are considered high risk and therefore must closely be followed and their care adjusted to how mom and the babies are developing, but all things being equal....let nature take its course.

With all this said, I am taking each step day-by-day.  My wants do not matter to the little ones growing inside of me.  They have their own desires and needs and they may decide to come much sooner than I would like, but I will do what is best for them.  I will also continue to listen to my perinatologist, my OB, and the neonatologist.  I will not blindly follow their directions, but I will ask questions when I don't understand and encourage discussion when I disagree. This is my body and these babies are mine and my husbands.  Sometimes doctors need to be reminded that you are apart of making healthcare decisions.

Thursday, January 22, 2009

Officially in my 30s - I am 30 weeks!

It's official, today I hit 30 weeks.  90% of babies born at this gestational age survive!  This is a HUGE milestone.  I am definitely doing the happy dance.  Every day, every week is better, but to reach 30 is awesome!  

The twins are doing great.  Their heart rates have been consistent, showing no signs of distress and great variability.  I've been in the hospital now 2.5 weeks and am hoping for 6 more!  I've actually been throwing around delivery dates, but I'll keep those to myself for now.  I'm just going to live in the moment and enjoy my 30 weeks!

Wednesday, January 21, 2009

Passing Time

On one hand my days to have some flow and on the other hand they don't.  Yesterday I woke up ridiculously early excited about the inauguration.  I had a steady flow of visitors which was really nice, but by last night I was exhausted.  Wouldn't you know, the one night I'm completely exhausted the babies stayed on the monitors perfectly, not a problem even when I got up to go to the bathroom.  I got to sleep peacefully without interruption.  My nurse actually came in this morning to say bye because she hadn't seen me all night.  

My daily walk is throughout labor & delivery and the postpartum area.  I try to stop in and wave to the NICU staff and occasionally I see babies in the regular nursery.  That is really the highlight of trip.  


Wednesday, January 14, 2009

Bored

It's almost noon and I've already done the two things I set out to do today.  Now, for the first time, I'm bored.  Thank goodness its almost lunch time.  

Sunday, January 11, 2009

Start of a New Week

I am pleased to say I am in a much better mood than I was yesterday.  I got a full night's sleep and the nurse only needed to come in once to adjust the monitors.  I think it is a matter of style on how each nurse handles "continuous" monitoring.

I met my new perinatalogist today and was very pleased.  He did a full scan ultrasound and we talked about some of my desires including delivery at 36 weeks.  He was so pleased with how great the twins are doing, how their cords looked, and how they have been behaving for the monitors that he agreed that if everything continues down this path that 36 weeks is doable.  Of course things CAN change in an instant, but so far so good and we can only take it one day at a time.

I also learned that the twins weigh almost 3 lbs each! 

The Last 24 Hours

The last 24 hours have been a little strained.  It started Friday evening when my nurse woke me almost every hour to find the babies.  While this can be quite common, I had not had this experience yet.  My previous nights consisted of me getting up and going to the bathroom multiple times in the evening and occasionally needing assistance getting the babies back on and staying on the monitors.  The nurses came in twice maybe three times in the night.  

Because the babies move often it is possible that they will come off the monitors and then come back on within a matter of seconds to a few minutes.  As long as they have shown good and consistent heartbeats prior to coming off the monitor this is not a problem.  Friday night it was a problem!  The nurse assigned to me used every possible moment to come and adjust them.  SIGH!  I didn't get any sleep.

If I don't get sleep for a good reason then I am a little more tolerant, but when I look up and she is walking into the room AND the babies are already back on the monitor before she touches them I am not happy.  So I woke up on Saturday very tired and frustrated.  

Going into the day tired I decided to take a nap after lunch.  Unfortunately, that didn't happen because physical therapy and my OB stopped by.  By the time my visitors were gone I was too awake to nap.

To add to it, my son got sick the night before so I was a little worried about him.  We think it was food related, but still not fun.  He and my husband didn't come to see me last night because he wasn't feeling at 100% yet.  I was a little sad, but knew that I needed my sleep so it was probably for the best.

Today I woke up with only 1 interruption!! I got a full night's sleep. YAY!   I get to catch up on my Sunday morning politics and root for the Steelers this afternoon.

Wednesday, January 7, 2009

The Small Things

The staff at the hospital has just been phenominial.  I'm the only long term patient right now so everyone pops in to say hi figuring they will be assigned to me at some point.

I got a fridge in my room.  YAY!!  I can keep all sorts of goodies in there so that's very cool.  Also the family came by to visit today.  No nap for the preschooler 2 days in a row make it difficult for a visit, so tonight was the first night since I've been here that they've been able to come visit.  I was also able to talk to the nutritionist who was able to make some arrangements for me to receive supplements to my meals.  I have been very diligent about keeping up my caloric and protein intake and was not sure how much the hospital would be able to help me meet the same goals.  The nutritionist added snacks and made a few other suggestions to the meal plan.  Very excited.

I've said it before, but I think all the mental prep I did to prior to being admitted has been really helpful.  Mind you, its only Day 2, but I'm feeling pretty good about my stay.  I want the twins to stay in as long as possible and every day I am here is 1 more day.

Tuesday, January 6, 2009

Setting a Schedule

Because I want to try to stay busy and make the best use of my time I'm pretty set on setting a schedule.  I know it's silly of me, but I feel like it will bring order to the day/week.

Here's what I've got so far - 
Monday, Wednesday, and Friday  - ultrasounds
Shower after breakfast
Work after lunch including job hunting for friends and non-profit work
Catch up on podcasts during work time
Evening with the family

That's it for now.  

Monday, January 5, 2009

Inpatient at the Hospital

Today is my first official day in the hospital.  It doesn't feel real yet.  Kind of surreal actually.  So I'm 27 1/2 weeks and am hoping to deliver at 36 weeks.  That means a little over 2 months in the hospital.  

The twins are doing great.  While we have our moments, they are pretty much staying on the monitors great.  I had a good 4 hour stretch this afternoon in which they were on the entire time. 

I'm feeling ok right now.  I've had time to prepare and my brief stay a few weeks ago was a bit of a reality check.  Got my Netflix, got my library books, and I've got some work to do.  Going to think about a routine and try to get fully settled in.